Quick Update

Quick update because I’m so beyond exhausted:

We are home now.  Jilly had her MRI and EEG.  She is on anti-seizure meds.  We have a lot of work ahead of us, but she is fine and will be fine…even if it means stressing the heck out of her parents in the meantime.

I’ll post pictures and a more detailed update tomorrow?

Through all of the crazy…all of the stress…all of the tears…and sheer terror…

I have to tell you: as I sat in a hospital the last few days I couldn’t help but think of how lucky I was.

That my daughter had the equipment and doctors and medicines and resources available to her that she did.

And I couldn’t help but think of all the other mommies out there in the world who instead of watching their babies hooked up to an IV (which is awful enough on its own merit)…but those mamas watch their babies seize uncontrollably.

No ambulance on the way.  No pediatric neurologists.  No MRI’s.  No fancy monitors.

Just sheer panic and helplessness.

And it killed me inside.

It reminds me why I do what I do.

Because I have been given to with a hand overflowing.

And I’ve been commanded to use that for others.

It’s not my money, my time, or my blog.

Right?

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jeannett

I'm a mom to four. A wife to one. I believe in story. I love telling you about mine and would love to hear yours. There's really no sense in wasting our suffering and not sharing in each other's joy. We're all in this together...even if it doesn't always feel like it.

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