Another trip in the ambulance.
Another visit to the emergency room.
This time I caught it right away and was able to get rescue meds into her immediately. They didn’t stop it, but they slowed things down…enough that it “only” took 3 more rounds of medication to get it stopped. (The longer a seizure lasts, the harder it is to stop and the more meds it takes to make it stop…and vice versa.)
The good news is that we think we’ve identified another trigger for her: physical pain. Both this time, and the last time, she had fallen and hurt herself. It looks like the pain of bumping her head/body/whatever triggers an episode. (Another trigger of hers that we’ve figured out is the stomach flu.)
This is good because we are beginning to piece together the puzzle and while it’s a crazy (terrifying) process, we are feeling like we are beginning to understand what to look for and when to keep a close eye on her.
The bad news is that we have to try to keep our toddler from falling and/or from getting the flu.
Should be easy, right?
I wish I was exaggerating or being dramatic when I told you that it’s 3:30 in the afternoon right now and she has been hysterically, unconsolably crying since 9:30 a.m. with only a 30 minute break.
The day after a seizure is the hardest part of it all. She’s miserable and hurting and coming off a lot of drugs and too young to know how to deal with feeling so yucky.
I’m tempted to cry alongside her. I’m tempted to scream. My chest is raw with little scratch marks, my arms are tired from holding her hands down as she tries to hit me, and I’ve peeled her teeth off of me more than once today.
But you know what?
She’s my girl. She feels awful. She doesn’t know how to cope. And I’m her mama. We’re in this together.
But most of all?
God is good. Always. No matter what.
I should tattoo that on me somewhere.
**Updated to add that the millisecond her Dad walked in the door from work, she not only stopped crying for him…but allowed him to feed her, drank water for him, and altogether changed her tune. Thanks kid…appreciate that. Mental note: Dad has to take the day post-seizure off from now on.
(If you want to print out that graphic up above, feel free by clicking HERE.)