So…this funny thing.
I follow the Epilepsy Foundation on Facebook.
I don’t really know why.
It popped up one day as one of those “You might like” things.
So I did.
And a few weeks back, I saw that they were hosting a video contest.
The campaign is designed to spread awareness and the prompt is to answer the question:
When it comes to epilepsy, what do you know now that you wish you knew sooner?
I couldn’t help but mull that question over. For days.
But I didn’t want to enter the contest. No sir. Nuh-uh. Not me.
Not because I didn’t want to create a video. Not because I was worried about winning or not winning. But…
…if I’m brutally honest…
Because it scared me.
It made it…the epilepsy…REAL.
The idea of in some small way aligning myself with a national foundation…not simply as a charitable venture for one of my fundraisers…but for personal reasons…
Scared the bejeezus out of me.
WE don’t need support groups.
WE don’t need campaigns.
WE don’t need purple ribbons. (Really? Purple? It had to be purple?)
Front and center.
Weeks went by and I pushed it aside.
And then I saw that yesterday was the last day to enter.
And…I threw together a video for it.
Not because I want to win the prize (although hello, iPad?!)…but…because I should probably swallow that filthy pride of mine and admit that yeah…we’re part of this whole thing too.
There is a Foundation for my daughter’s condition.
They offer advocacy and support.
Not just for OTHER people…but…for ME too.
That’s weird for some reason.
I even looked at their National Walk/Fundraiser. And it freaked. me. out.
I tweeted my friend Kelle and asked how she ever made that leap from mom to…participant.
I loved her response: “I know mama. It sucks and is scary. Go when you’re ready.”
To think of being there. Not just as a supporter…but a…recipient?
You would think that the hours in hospitals and specialists offices would be enough to convince me of this whole thing…but…somehow…this…yeah. I don’t even know how to put it into words.
But it kinda sucks if I’m honest. And it’s scary.
So all of that yapping to say that I did it.
I made a video.
It’s cheesy. It’s TOTALLY homemade. It’s nothing fancy.
Frankly, I don’t even know if I answered the question the way they intended it.
it’s my first step in really embracing this whole gig. Taking some steps into spreading awareness and advocacy for epilepsy.
I might even order a bracelet or something.
So, check it out HERE if you’d like.
And, if you want, you can even vote for me.
Although that’s totally not the point.
(Apparently you can vote once a day until February 1. That’s kinda always kind of annoying, but it’s their gig. Feel free to vote as much, little, or not at all if you’d like.)